Sonny is the heart of our mission and the reason this foundation exists, driving our hope for a brighter future together. Sonny was diagnosed at age 3 with MECP2 Duplication Syndrome, a rare genetic neurodevelopmental disorder that primarily affects boys, leading to developmental delays, low muscle tone, frequent lung infections, and a high risk of seizures. Despite these challenges, Sonny embraces life with a bright spirit—he loves reading, playing with friends, swimming, and T-ball. While Sonny continues to enjoy the joys of childhood, his parents are fiercely committed to fighting for his future. They are active supporters of the 401 Project, a groundbreaking research initiative focused on finding a cure for MECP2 Duplication Syndrome. Clinical trials for a potential cure are currently underway, and Sonny's family remains hopeful and determined to secure his place in these trials as soon as the opportunity becomes available.